So K’s immunologist called bright and early today. He said that he thought for sure that her pervious labs looked so strange because of lab error. He was shocked to see that her labs looked even worse this time and we’re done at a different lab. He said he still can’t believe she looks as healthy as she is. The way she looks on paper, he would expect her to have abscesses everywhere but she doesn’t. He said that he suspects there may be a bone marrow issue. He did not elaborate at all on it but made sure we had our hematology appt set up.
After that we got up and got our day going. K had some pear and chick pea pancakes for breakfast and some corn flakes. Then we just played a lot and hung out.
Later, k played in her high chair while I made some green bean and chick pea pancakes. I baked them this time and they are about the size of a quarter. K loved them. She ate 12 for dinner. It’s nice having a safe flour to play around with.
We also started concentrating k’s formula today. We will go slower this time then last time and hope that she will tolerate it. So far so good though.
On a side note, one of K’s sweet friends has been struggling the past few days. She has a lot of the same issues K has so we will just say a lot of extra prayers for S today!! Thinking of you sweet baby S!!
And I’ll end with some silly pics of K!
Current meds:
Augmentin 5ml twice a day
Clindamycin 3.75ml twice a day
Nystatin 2ml four times a day
Zyrtec 2.5ml once a day
Nexium 10 mg twice a day
Methyl folate 1ml once a day
Vitamin D 2,400iu once a day
Theralac probiotic 1/4tsp once a day
Zinc 15mg once a day
FPIES AND OUR DAILY LIVES 